National Vitiligo Bond Inc Foundation

Let Your Light Shine! Awareness+Empowerement+Support

Minority with Vitiligo-Free Download: Dr. Spritz Vitiligo Questionnaire

Free Download! Dr.-Spritz-Vitiligo-Questionnaire


Information below provided by Vitiligo Support International!

As many of you know, we are working to discover the genes that cause vitiligo. Understanding these genes will help us understand the basic biology, a key first step towards better treatments or cure. We have now completed the first large genetic studies in Caucasians, and a parallel study has been done in Chinese. The results have given us extraordinary understanding of vitiligo, far better than we have ever had before. The results are also clear that between Caucasians and Chinese Asians, while there are some similarities, there are also very major differences in the causes of vitiligo.  Therefore, each ethnic group must be studied individually.

This means that future treatments and even cures may not benefit all patients equally, based on underlying personal and ethnic genetic differences. Thus, certain drugs may work best for certain individuals or for patients from certain ethnic groups. This is already true for some drugs that turn out to only work well in African-Americans, and so are only FDA-approved for use in those patients.

We are in urgent need of patients from the major USA minority groups-African-American and Hispanic-Latino, as well as Indian-Pakistani.  To date we have had to rely on Caucasians for our studies as they are the only group that have volunteered to participate in numbers great enough to study.

We need your participation – both minority patients and minority “controls” (non-blood relatives without vitiligo). Your personal information, by law, will be kept private and will not be sold or disclosed.  Through your participation, you will help to ensure that future discoveries and treatments will apply to minority groups as well.

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About

Natasha Pierre McCarthy is the proud founder of Vitiligo Bond Inc., a nonprofit organization dedicated to providing support and encouragement to individuals with vitiligo. From a vision through teaching as a Christian business professor, Vitiligo Bond was created. We educate through creative forms to patients and the public. Through vitiligo 101 sessions at Emory University with Dr. Holla, special community events, social media, partner support groups, public figures and state leaders we are able to bond and have available support for anyone suffering with vitiligo. Vitiligo Bond has created a path for vitiligo awareness and positive expression. We now have the following states through Governor Proclamations that recognize vitiligo awareness: {Colorado, Georgia, Florida, Indiana, Louisiana, Maryland, Massachusetts, Mississippi, New Jersey, North Carolina, South Carolina, & West Virginia}. In addition, Vitiligo Bond has been recognized by Congressman Hank Johnson. Congressman Johnson was also instrumental in our advocacy efforts to help get special recognition during the month of June from our President Obama to recognize and stand together with people who suffer with vitiligo. I believe that God created us for a purpose and everyone deserves the right to have fullness and a quality life. We all have the ability to shine. Vitiligo Bond Inc. is constantly working to raise awareness of the mysterious illness and use their platform in order to fund research that will hopefully lead to the discovery of the cause and a cure for vitiligo.

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