National Vitiligo Bond Inc Foundation

Let Your Light Shine! Awareness+Empowerement+Support

How To Start A Support Group Guide

Vitiligo Bond’s Vitiligo Awareness Support Group Leader Events Guide ©

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Who can start a support group? A Vitiligo Awareness Support group can be hosted by any one person or persons interested in serving as advocates for the mission and vision of Vitiligo Bond Inc. within their community.

Why did we write a support guide? Many individuals have approached us on starting support groups in the USA, Europe and India. Vitiligo Bond believes that support groups should make their groups their own based on their strengths, resources and members. Vitiligo Bond upon request has helped and continues to help members nationally and internationally on how to start a support group.  We have helped groups with awareness materials.

This is a quick guide in a nutshell to get you started. Since starting Vitiligo Bond’s Awareness and support program in 2010 we have helped over 18 states get awareness proclamations in their state during the month of June so that they can bring awareness in their state.  You can visit this link below to see awareness proclamations and state vitiligo leaders.

National Vitiligo Awareness Month June Campaign

support group emory

How do I start a support group? The support leader invites friends, family and guests who might be interested in the cause to their home or other location as the support leader see fit. Invitations/fliers may be sent via email or snail mail.

How to create a flyer link: http://www.ehow.com/how_6819269_create-flyers.html

You can use Evite for online invitation: http://www.evite.com

Online event planning site: http://www.eventbrite.com

The support leader provides refreshment for guests.

Feel free to share our YouTube clips from our channel at your support group sessions:

Vitiligo Bond Inc. awareness t-shirts, decals, and other accessories are available for purchase from our website in advance for each guest. You can create your own as well.

Here’s a  link to our online awareness store: http://www.zazzle.com/vitiligobond

 Theme The theme of your event should be purple. Resource packet/handouts must be made available to attendees to have and to share.

Vitiligo Bond is a proud member of the NIAMS/NIH Health Outreach Committee

Resource handout links are available in English or Spanish below:

English:http://www.niams.nih.gov/Health_Info/Vitiligo/vitiligo_ff.pdf

Spanish: http://www.niams.nih.gov/Portal_En_Espanol/Informacion_de_Salud/Vitiligo/vitiligo_ff_espanol.pdf

Thank you for your support of Vitiligo Bond’s Vitiligo Awareness Program! We are truly grateful to have you serve alongside us! Proceeds from any of your purchase will continue to help us do what we are doing.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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About

Natasha Pierre McCarthy is the proud founder of Vitiligo Bond Inc., a nonprofit organization dedicated to providing support and encouragement to individuals with vitiligo. From a vision through teaching as a Christian business professor, Vitiligo Bond was created. We educate through creative forms to patients and the public. Through vitiligo 101 sessions at Emory University with Dr. Holla, special community events, social media, partner support groups, public figures and state leaders we are able to bond and have available support for anyone suffering with vitiligo. Vitiligo Bond has created a path for vitiligo awareness and positive expression. We now have the following states through Governor Proclamations that recognize vitiligo awareness: {Colorado, Georgia, Florida, Indiana, Louisiana, Maryland, Massachusetts, Mississippi, New Jersey, North Carolina, South Carolina, & West Virginia}. In addition, Vitiligo Bond has been recognized by Congressman Hank Johnson. Congressman Johnson was also instrumental in our advocacy efforts to help get special recognition during the month of June from our President Obama to recognize and stand together with people who suffer with vitiligo. I believe that God created us for a purpose and everyone deserves the right to have fullness and a quality life. We all have the ability to shine. Vitiligo Bond Inc. is constantly working to raise awareness of the mysterious illness and use their platform in order to fund research that will hopefully lead to the discovery of the cause and a cure for vitiligo.

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