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Congratulations Michigan Vitiligo Awareness Proclamation Campaign

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michiganCongratulations Michigan!

Michigan state is the 16th state added to our 2016 ‘Vitiligo Awareness Proclamation Campaign’.

We would like to say a special thank you to Governor Rick Snyder and staff in helping us bring awareness to Vitiligo.

Vitiligo is an autoimmune, non-contagious skin disorder that is generally misunderstood by the public.

There is currently no funding for bringing awareness and very little funding for research for Vitiligo.

People who live with Vitiligo are often discriminated against because of the white patches on their skin. Some of us live in shame because of the skin disorder.

Adolescents are bullied at school. There are devastating quality of life issues and we and our partners want to change it.

We hope this year, before President Barack Obama leaves office, that he will reconsider and grant us a National Proclamation to help us bring more awareness to Vitiligo.

We would also like to congratulate our partners over at VStrong for the time and dedication to support people with vitiligo.  We hope that your model of care and support for vitiligo patients can have a major impact on treatment for vitiligo patients.

 

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About

Natasha Pierre McCarthy is the proud founder of National Vitiligo Bond Inc. Foundation (Vitiligo Bond), a nonprofit organization dedicated to supporting and empowering individuals with vitiligo. Inspired by her work as a Christian business professor and teaching from her pastor, she transformed her vision from God into reality by creating a platform that educates, uplifts, and connects those affected by vitiligo. Vitiligo Bond raises awareness through innovative educational initiatives, including Vitiligo 101 sessions at Emory University with Dr. Holla, community events, social media outreach, partnerships with support groups, and collaborations with public figures and state leaders. By fostering a strong sense of community, Vitiligo Bond ensures that no one living with vitiligo feels alone. Through dedicated advocacy efforts, Vitiligo Bond—alongside passionate advocate volunteers—has played a key role in spearheading and securing Governor Proclamations in multiple states, officially recognizing Vitiligo Awareness in Colorado, Georgia, Florida, Indiana, Louisiana, Maryland, Massachusetts, Mississippi, New Jersey, North Carolina, South Carolina, and West Virginia... The organization has helped start up support groups and nonprofits nationally and internationally. In addition, well known business brands have consulted and used models from the organization to represent their products and to help destigmatize vitiligo. Additionally, the organization has been recognized by Congressman Hank Johnson, who supported efforts to gain national recognition for vitiligo awareness. This advocacy contributed to President Barack Obama acknowledging Vitiligo Awareness during the month of June. Currently, further legislative efforts have been initiated to address bullying. Natasha believes that everyone is created with a purpose and deserves to live a full, vibrant life. “We all have the ability to shine.” Vitiligo Bond remains committed to raising awareness, destigmatizing vitiligo, advocating for youth who experience bullying, and supporting men and women struggling with self-acceptance. Through its platform, the organization also assist in research efforts to uncover the cause and ultimately find a cure for vitiligo.

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