2017 National Vitiligo Bill Introduced

A National Vitiligo Bill was introduced March 20th 2017 to bring about awareness to vitiligo.  See press release links below.

Press Release

We would also like to thank Rowdy, Ava, Carter & Stella for bringing awareness to vitiligo this week.  We would also like to thank Ava’s Mom Julie for always sharing Ava’s photos every year to help us spread awareness about vitiligo.  This recent photo from Ava’s Mom, Julie speaks volumes.   

 

 

 

 

 

The National Vitiligo Bill will help children like Ava, Carter and many more ease the stigma for people living with vitiligo.

Please help support organizations that help bring about awareness for vitiligo.  There is currently no federal funding for advocacy for awareness and research.  There are GoFundMe pages setup for AVRF, Vitiligo Bond, Rowdy, and more.

 

 We will also like to send love to our parents especially mothers who reach out to us for help when they have no where to turn too.

We hear you and we are working hard to make a change.

Thank you in advance.

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About

Natasha Pierre McCarthy is the proud founder of National Vitiligo Bond Inc. Foundation (Vitiligo Bond), a nonprofit organization dedicated to supporting and empowering individuals with vitiligo. Inspired by her work as a Christian business professor and teaching from her pastor, she transformed her vision from God into reality by creating a platform that educates, uplifts, and connects those affected by vitiligo. Vitiligo Bond raises awareness through innovative educational initiatives, including Vitiligo 101 sessions at Emory University with Dr. Holla, community events, social media outreach, partnerships with support groups, and collaborations with public figures and state leaders. By fostering a strong sense of community, Vitiligo Bond ensures that no one living with vitiligo feels alone. Through dedicated advocacy efforts, Vitiligo Bond—alongside passionate advocate volunteers—has played a key role in spearheading and securing Governor Proclamations in multiple states, officially recognizing Vitiligo Awareness in Colorado, Georgia, Florida, Indiana, Louisiana, Maryland, Massachusetts, Mississippi, New Jersey, North Carolina, South Carolina, and West Virginia... The organization has helped start up support groups and nonprofits nationally and internationally. In addition, well known business brands have consulted and used models from the organization to represent their products and to help destigmatize vitiligo. Additionally, the organization has been recognized by Congressman Hank Johnson, who supported efforts to gain national recognition for vitiligo awareness. This advocacy contributed to President Barack Obama acknowledging Vitiligo Awareness during the month of June. Currently, further legislative efforts have been initiated to address bullying. Natasha believes that everyone is created with a purpose and deserves to live a full, vibrant life. “We all have the ability to shine.” Vitiligo Bond remains committed to raising awareness, destigmatizing vitiligo, advocating for youth who experience bullying, and supporting men and women struggling with self-acceptance. Through its platform, the organization also assist in research efforts to uncover the cause and ultimately find a cure for vitiligo.

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