Congratulations Alabama! Alabama state is the 15th state added to our 2016 ‘Vitiligo Awareness Proclamation Campaign’. We would like to say a special thank you to Governor Robert Bentley and staff in helping us bring awareness to Vitiligo. Vitiligo is an autoimmune, non-contagious skin disorder that is generally misunderstood by the public. There is currently no funding for bringing awareness and very little funding for research for Vitiligo. People who live with Vitiligo are often discriminated against because of the white patches on their skin. Some of us live in shame because of the skin disorder. Adolescents are bullied at school.…
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Our journey with April began when her mother contacted us in Atlanta regarding a Radical Selfie Expressions event hosted by Mrs. Richards, aimed at showcasing Vitiligo models in Atlanta, GA. Following that initial connection, we invited April and her mother to participate in our inaugural fashion show for World Vitiligo Day in Washington, DC. Today, in collaboration with several prominent support groups, we are excited to celebrate our first official World Vitiligo Day in the US on June 25th, 2016. If you wish to get involved, please reach out to support@vitiligobond.org.
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Vitiligo Bond initiated this project in 2014 to address bullying faced by our youth with vitiligo. We collaborated with the Georgia school system to create resources that help employees raise awareness and educate students about vitiligo. This ongoing initiative will extend to the 14 states where we have proclamations, aiming to inform both teachers and students. Online Advocates! For printable information on vitiligo, provided by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), please click or copy and paste the link below:
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If you are in Atlanta, and would like to be part of our “Vitiligo Documentary” send an email with your contact to support@vitiligobond.org. In the subject line add “Vitiligo Documentary”. We hope to be visiting other states and countries. Featured in photo our lovely Bianca Rosamarie Schönhofer!
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North Carolina is the first state approved for renewal of the 2016 Vitiligo Awareness Proclamation. We would like to say a special thank you to Governor Pat McCrory and staff for continued support in helping us raise awareness of Vitiligo. Vitiligo is an autoimmune, non-contagious skin disorder that is generally misunderstood by the public. There is currently no funding for bringing awareness and very little funding for research for Vitiligo. People who live with Vitiligo are often discriminated against because of the white patches on their skin. Adolescents are bullied at school. There are devastating quality of life issues and we…
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Featured in photo is Dr. Stephen I. Katz, M.D. Ph.D., Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and Vitiligo Bond’s Vice President, Dr. Strong collaborating and influencing change in healthcare and vitiligo. To find out more about Dr. Strong click on link below “Dr. Strong”. Dr. Strong For more information about outreach event click on link below: NIAMS Coalition 2015 Outreach & Education Meeting Thank you Dr. Strong!