Before introducing the ‘Walk A Day In My Shoes’ campaign, let’s take a moment to discuss vitiligo. Vitiligo is a condition characterized by the loss of skin pigmentation, resulting in white patches on the skin. Many people may not be familiar with this condition. Often, vitiligo is linked to the King of Pop, Michael Jackson, yet sadly, many did not believe he had it. Societal pressure and the desire to conform can lead individuals to depigment their skin to appear “normal” in the eyes of others. For years, vitiligo has affected infants, adolescents, and adults across all races, classes, and…
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Congratulations Michigan! Michigan state is the 16th state added to our 2016 ‘Vitiligo Awareness Proclamation Campaign’. We would like to say a special thank you to Governor Rick Snyder and staff in helping us bring awareness to Vitiligo. Vitiligo is an autoimmune, non-contagious skin disorder that is generally misunderstood by the public. There is currently no funding for bringing awareness and very little funding for research for Vitiligo. People who live with Vitiligo are often discriminated against because of the white patches on their skin. Some of us live in shame because of the skin disorder. Adolescents are bullied at school. There are…
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Congratulations Alabama! Alabama state is the 15th state added to our 2016 ‘Vitiligo Awareness Proclamation Campaign’. We would like to say a special thank you to Governor Robert Bentley and staff in helping us bring awareness to Vitiligo. Vitiligo is an autoimmune, non-contagious skin disorder that is generally misunderstood by the public. There is currently no funding for bringing awareness and very little funding for research for Vitiligo. People who live with Vitiligo are often discriminated against because of the white patches on their skin. Some of us live in shame because of the skin disorder. Adolescents are bullied at school.…
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Our journey with April began when her mother contacted us in Atlanta regarding a Radical Selfie Expressions event hosted by Mrs. Richards, aimed at showcasing Vitiligo models in Atlanta, GA. Following that initial connection, we invited April and her mother to participate in our inaugural fashion show for World Vitiligo Day in Washington, DC. Today, in collaboration with several prominent support groups, we are excited to celebrate our first official World Vitiligo Day in the US on June 25th, 2016. If you wish to get involved, please reach out to support@vitiligobond.org.
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Vitiligo Bond initiated this project in 2014 to address bullying faced by our youth with vitiligo. We collaborated with the Georgia school system to create resources that help employees raise awareness and educate students about vitiligo. This ongoing initiative will extend to the 14 states where we have proclamations, aiming to inform both teachers and students. Online Advocates! For printable information on vitiligo, provided by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), please click or copy and paste the link below:
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If you are in Atlanta, and would like to be part of our “Vitiligo Documentary” send an email with your contact to support@vitiligobond.org. In the subject line add “Vitiligo Documentary”. We hope to be visiting other states and countries. Featured in photo our lovely Bianca Rosamarie Schönhofer!