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Minority with Vitiligo-Free Download: Dr. Spritz Vitiligo Questionnaire

Free Download! Dr.-Spritz-Vitiligo-Questionnaire


Information below provided by Vitiligo Support International!

As many of you know, we are working to discover the genes that cause vitiligo. Understanding these genes will help us understand the basic biology, a key first step towards better treatments or cure. We have now completed the first large genetic studies in Caucasians, and a parallel study has been done in Chinese. The results have given us extraordinary understanding of vitiligo, far better than we have ever had before. The results are also clear that between Caucasians and Chinese Asians, while there are some similarities, there are also very major differences in the causes of vitiligo.  Therefore, each ethnic group must be studied individually.

This means that future treatments and even cures may not benefit all patients equally, based on underlying personal and ethnic genetic differences. Thus, certain drugs may work best for certain individuals or for patients from certain ethnic groups. This is already true for some drugs that turn out to only work well in African-Americans, and so are only FDA-approved for use in those patients.

We are in urgent need of patients from the major USA minority groups-African-American and Hispanic-Latino, as well as Indian-Pakistani.  To date we have had to rely on Caucasians for our studies as they are the only group that have volunteered to participate in numbers great enough to study.

We need your participation – both minority patients and minority “controls” (non-blood relatives without vitiligo). Your personal information, by law, will be kept private and will not be sold or disclosed.  Through your participation, you will help to ensure that future discoveries and treatments will apply to minority groups as well.

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Natasha Pierre McCarthy is the visionary founder of the National Vitiligo Bond Inc. Foundation (Vitiligo Bond), a nonprofit devoted to supporting and empowering individuals living with vitiligo. Drawing inspiration from her experiences as a Christian business professor and the guidance of her pastor, Natasha turned a God-inspired vision into reality—creating a platform that educates, uplifts, and connects those affected by vitiligo. Vitiligo Bond promotes awareness through innovative educational initiatives, including Vitiligo 101 sessions at Emory University with Dr. Holla, community events, social media campaigns, partnerships with support groups, and collaborations with public figures and state leaders. By fostering a strong, supportive community, Vitiligo Bond ensures that no one with vitiligo feels alone. Through tireless advocacy, Vitiligo Bond and its dedicated volunteers have been instrumental in securing Governor Proclamations in multiple states, officially recognizing Vitiligo Awareness in Georgia, Colorado, Florida, Indiana, Louisiana, Maryland, Massachusetts, Mississippi, New Jersey, North Carolina, South Carolina, and West Virginia... The organization has also supported the launch of vitiligo focused support groups and nonprofits both nationally and internationally. Well-known brands have collaborated with Vitiligo Bond, featuring models from the organization to destigmatize vitiligo and promote inclusivity. Natasha’s work has earned recognition from Congressman Hank Johnson, whose support helped bring national attention to vitiligo awareness, including acknowledgment by President Barack Obama administration during Vitiligo Awareness Month in June. Current efforts also include legislative initiatives (HRES 792) to address bullying and advocate for youth affected by vitiligo. Believing that everyone is created with a purpose and deserves a full, vibrant life, Natasha reminds us, “We all have the ability to shine.” Vitiligo Bond remains steadfast in its mission to raise awareness, promote self-acceptance, support those facing bullying, destigmatize vitiligo, and advance research toward understanding and ultimately curing vitiligo.