Empowerment - Vitiligo Resources

VITILIGO SUPPORT QUESTIONS, ANSWERS, & UPDATES MEETUP

support group emory

Emory University’s Department of Dermatology will host another vitiligo awareness and support group event September 06, 2014 from 11 a.m. – 12:00 p.m. in the Alperin Auditorium at 1525 Clifton Road. The event is being held in collaboration with Vitiligo Bond Inc., a registered nonprofit organization that seeks to provide support for those living with vitiligo.

Vitiligo is a pigmentation disorder in which the cells that make pigment in the skin are destroyed resulting in white patches that appear on the skin in different parts of the body.

“It is said that vitiligo has no known cause and no known cure. But people with vitiligo and physicians who treat vitiligo cannot help but search for the cause and cure,” says Sulochana Bhandarkar, MD, assistant professor of dermatology at Emory University School of Medicine.  “We want patients with vitiligo to know they are not alone.”

The event will offer information about vitiligo, as well as provide a question & answer forum for participants. Participants can also learn about living with vitiligo, how you can take holistic approaches, how nutrition affects your pigment, learn about new treatments and early interventions in treating kids and adults with vitiligo from Dr. Anantha Holla, Dr. Sulochana Bhandarkar and Vitiligo Bond. (Light refreshments will be served).

To register for the event visit www.vitiligobond.org or you can click the link below to register:

https://docs.google.com/spreadsheet/viewform?formkey=dGwwSjZISUFCaEtHTkRiR0ZlMkxUVXc6MA#gid=0

Contact:

Ms. Henry

404-997-2201

info@vitiligobond.org

Natasha Pierre McCarthy is the visionary founder of the National Vitiligo Bond Inc. Foundation (Vitiligo Bond), a nonprofit devoted to supporting and empowering individuals living with vitiligo. Drawing inspiration from her experiences as a Christian business professor and the guidance of her pastor, Natasha turned a God-inspired vision into reality—creating a platform that educates, uplifts, and connects those affected by vitiligo. Vitiligo Bond promotes awareness through innovative educational initiatives, including Vitiligo 101 sessions at Emory University with Dr. Holla, community events, social media campaigns, partnerships with support groups, and collaborations with public figures and state leaders. By fostering a strong, supportive community, Vitiligo Bond ensures that no one with vitiligo feels alone. Through tireless advocacy, Vitiligo Bond and its dedicated volunteers have been instrumental in securing Governor Proclamations in multiple states, officially recognizing Vitiligo Awareness in Georgia, Colorado, Florida, Indiana, Louisiana, Maryland, Massachusetts, Mississippi, New Jersey, North Carolina, South Carolina, and West Virginia... The organization has also supported the launch of vitiligo focused support groups and nonprofits both nationally and internationally. Well-known brands have collaborated with Vitiligo Bond, featuring models from the organization to destigmatize vitiligo and promote inclusivity. Natasha’s work has earned recognition from Congressman Hank Johnson, whose support helped bring national attention to vitiligo awareness, including acknowledgment by President Barack Obama administration during Vitiligo Awareness Month in June. Current efforts also include legislative initiatives (HRES 792) to address bullying and advocate for youth affected by vitiligo. Believing that everyone is created with a purpose and deserves a full, vibrant life, Natasha reminds us, “We all have the ability to shine.” Vitiligo Bond remains steadfast in its mission to raise awareness, promote self-acceptance, support those facing bullying, destigmatize vitiligo, and advance research toward understanding and ultimately curing vitiligo.